I love giving Emma a clean and pretty room. So many things out of our control, but a clean room is something we can control. #medicalmom #momlife #cleaningtiktok #dayinmylife #hospice #battendisease #specialneeds

It’s been some time since I shared where Bella’s at in her medical journey. Shes still waiting (through bowel failure) for the call to get a full bowel transplant. 💚 We don’t know when that call will come but until then her specialists support her with ground-breaking treatments for rare disease. 💚 Today we embark on yet another children’s hospital admission to help elongate the life of her perminent IV (CVC) and improve her bowel function. 💚 Thank you for all the love & support BRAVElings. We feel it every day, Thank you for being here with us, through it all. 💚 #bellabrave #fyp #foryoupage #oceans #spiritleadme #strength #love #faith #medicalmom #organtransplantawareness #organdonationawareness #hirschsprungsdisease #nocolonstillrollin #brave

Every parents worst nightmare has been my reality for the past 2.5 years. #medicalmom #changingouthisbed #medicalbed #hospitalbed #braininjury #anoxicbraininjury #grief #loss #pain #heartbreak #nightmare #fyp #foryou #fu

I’ll be right here by your side sweetheart, for as long as you need to fight. 🩷 You got this brave girl. 🩷 #bellabrave #fyp #foryoupage #waitingfortransplant #organdonationawareness #givethegiftoflife @SickKids Foundation #davidfosterfoundation 💚 #hirchsprungsdisease #brave #mirrors @Justin Timberlake @Jessica Biel #sickkids #medicalmom #mirrors #mirrorschallenge #kylact

Beyond thankful for my sweet girls!! They are my greatest blessing and biggest miracle! They’ve fought so hard so I will keep fighting for them. #twinmom #specialneedsmom #conjoinedtwins #delaneytwins #mygreatestblessing #ilovebeingamom #fightforthem #thankGod #biggestmiracle #miraclebabies #NICUmom #medicalmom

Jessica Gasser aka MedicalMamaJess was arrested last week & has deleted all of her accounts. This is allegedly a serious Munchausen by proxy case. If you have info on this please contact detectives. #munchausenbyproxy #truecrime #gypsyrose #texas #medicalmom #feedingtubeawareness #greenscreenvideo #greenscreen

Jk jk 😂 We couldnt resist adding a lil comic relief to Bella’s 8hr infusion day. 🫠 Bella has had facial edema since her SVC Syndrome has worsened and we have discovered she has lower albumin levels due to her chronic bowel disease; Hirschsprungs. 💚 We are still waiting to hear from her bowel transplant team on if she can remain listed due to her newer “medical obstacles.” 🩷 As always, Thank you BRAVElings for ur continued love & support & hop over to our IG (ljnk in bio) for our daily updates.👩‍👧 #bellabrave #fyp #foryoupage #brave #medicalmom #nursesoftiktok #nurse #nursestiktok

Our service dog Double never fails to do his part to keep my 4 year old type 1 diabetic safe. Dexcom CGM may be delayed with no alert. Mom may forget to recheck as planned. Apple watch may be lagging to update blood sugar numbers. But Double never fails. So thankful for this boy because he is truly so dependable! #servicedog #medicalalertdog #diabeticalertdog #workingdog #servicedogsoftiktok #servicedoglife #type1diabetes #t1d #t1dkid #invisibleillness #autoimmunedisease #diabetes #diabetesawareness #typeonediabetes #hypoglycemia #lowbloodsugar #cockerspaniel #dog #dogsoftiktok #medicaltiktok #medicalmom #foryou #fyp

@SickKids Foundation we gotchu & you got us. 💙🩵 #bellabrave #sickkidshospital #sickkids & @RMHC Canada 💛❤️ Our #homeawayfromhome 🏡 & our local hospital in #swiftcurrent #saskatchewan 💚 #albertachildrenshospital in Calgary & @PattisonChildrens 🏥 #medicalmom #fyp #foryoupage #momsoftiktok #sickkidsstrong #brave #nursesoftiktok #pedsnurse #hospitallife #ronaldmcdonaldhousecharities #ursula #thelittlemermaid #dearsweetchild #canada

Hi 👋🏻 It’s me. I’m Bella’s mom, its me. This will prolly get like zero views cause Bellas not in it 🫠 but for anyone new here I wanted to reintroduce myself. 😉 I’m a teacher by trade who morphed into a full time medical momma when my brave girl was born with 3 very rare conditions🩷 I hope to inspire other caregivers & parents out there that even though the valleys can be long and dark, you can find strength to climb those peaks. 🏔️ Have faith and reach out. Us medical mommas are a different bread 😎 We gotchu. I also recently had to opportuntiy to enhance my content creator profile thanks to Shine Talent Group & was styled by Brian Jarvis (hair), Sam Compton (makeup), Jullianne Costigan (style), shoes @ALDO Shoes 👠 The insoles in these had me walking on clouds for 5hrs! Pants & cartigan by ba&sh. @Bashparis ✨ #bellabrave #fyp #foryoupage #kylact #ootd #makeover #shinetalentgroup @Shine Talent Group #medicalmom #style #fallfit #glam #transition #viral #momsoftiktok

Read caption ⬇️ I LOVE Emma’s home nurses! I love them as a person and I love everything they do for Emma and our family. However, sometimes, I love alone time with the kids, having privacy in my own home, and doing things at my own pace. Balancing the two is key for me! Enjoying the days im alone and enjoying the days with a nurse here. I love this little life ❤️❤️ #blessed #medicalmom #beyourownhero #battendiseaseawareness #curebatten #specialneedsfamily

My love language for Emma is Acts of Service 🩷 #medicalmom #specialneedsfamily #battendisease #grateful #medicallycomplex

perfect. Now she loves to hold him, kiss him, and love all over him 🥰 and Luca absolutely adores her. He just loves watching her and is so intent on her every move, it’s precious. I can’t wait to watch all of their relationships develop. Mia came home last night and told us “I missed Luca the most” haha and sweet Kai will hopefully be feeling better soon, he feels so sad he can’t give Luca “his daily smooches”. I love these days. I’ve dreamed of these days. I can’t believe I’m getting to live these days 🖤 #downsyndrome #adoption #viral #momsoftiktok #nicu #medicalmom #foryoupage #fyp #siblings

No one told me about the trauma that would torture me following our NICU stay and that is exactly why I keep talking about it. If this is you, I see you and you are far from alone. #birthtrauma #nicu #medicalmom #ppd #ppa

Do you know what it takes to care for a disabled child🧐#disabilityawareness #thisisafm #medicalmom #medicallycomplex #healthcarehumor #caregiver

Hearing from you helps us too! Where our BRAVElings at? #looncall #naturecall #bellabrave #stichthis #duetthis #kidsoftiktok #medicallife #ostomyawareness #scidawawareness #hirschsprungsdisease #transplant #transplantlisted #dwarfismawareness #medicalwarrior #medicalmom #hospitallife

Finally, finally, finally all four of my sweet babies together, I can’t even believe it!!! They are all obsessed with each other already, it’s the sweetest thing in the world. Today was one of the best days of my life, it honestly feels so surreal 🥹 I can’t wait to take you all along for this next chapter. So much sweetness for all of us lies ahead, this is just the beginning 🤍 Also when Aria gets excited she wants to just hug and kiss Kai over and over as you see here 😆 she’s like “it’s overflowing, I have a lot to give, Kai come here” 🤣 #downsyndrome #adoption #viral #fyp #momsoftiktok #nicu #medicalmom #foryoupage

What hurts the most, was being so close ❤️. Please take time to talk to your family about the importance of registering to be an organ donor this Christmas🤩. For kids & people like Bella, still waiting for this type of life saving surgery❤️#fyp #foryou #bellabrave #kidsoftiktok #kids #babycute #cute #cutebaby ##bellabrave #fyp #foryoupage #organdonationawareness #donatelife #davidfosterfoundation #organdonation #courage #medicalmom #waitingfortransplant

What a wild few months! Three months in the NICU in another state separated from my other kids took a toll on my mama heart. Coming home and our whole household getting sick was so rough, Luca crying all the time what intense, and landing back in the hospital with Luca broke my heart to see him struggling again. Things have been stacking for quite a while and I was unsure when it was all going to calm down, I knew it would but I would be lying if I didn’t share I was weary. I was struggling, it was all feeling like it was too much. I was leaning on God but felt like He wasn’t there, Tomas reminded me that this is where faith comes in, he was right. The sleepless nights had caught up with me and my anxiety was at an all time high. I had gone to so long waking up think “today will be better” only for it to not be, I was on But something shifted this past week. I was home with all my babies, everyone was healthy, Luca didn’t cry all the time, he was happy 🥹, and we were out of the hospital. I got to spend quality time with my family and it’s exactly what I needed. I felt God’s peace and presence again. It’s been a hard season, but I feel the start of a new one, and I’m grateful. We made it, we made it through and I’m just living for all these sweet moments with my giggly babies.I’m soaking it all up and I don’t know if it will ever get old. I know the veil was thin in me living this reality, we almost lost Luca too many times, but he is home now and we are living it out, living life with him, that will never be lost on me 😭 Thank you for being here for the highs and lows, the messy and miracles, we love you all and I couldn’t imagine the last few months without you all praying and cheering us on. We made it.God is good. I’m getting my pink back 🦩 #downsyndrome #adoption #foryoupage #momsoftiktok #medicalmom #siblings #momlife

You guyyyyyssss SURPRISE!!!!! This all happened so fast and it’s been such a wild day and this is the first second I have had to post an update! During rounds today, we all discussed how Luca is ready to be discharged from the hospital! It was a crazy busy day going over all the things, signing off on all the things, and saying goodbye 🥹. The medical teams and staff have become like family to us over these last three months, I can’t even put into words how much they have meant to us. I won’t miss the NICU but I will miss them. We had a Doctor these last few months that I believe was hand picked by God. He worked with me and trusted my opinions, he cared about what i had to say and we collaborated every step of the way. Our NICU nurses are actual angels on earth, they have carried us in some of our darkest moments and cheered us on every step of Luca’s health. I will miss them all and I’m tearing up just thinking about it, I mentally and emotionally wouldn’t have survived these last three months without them. If you’re reading this (I know you are ☺️) @childrensofal we love you 🤍. Today everything was reviewed by the state for clearance in regards to Luca’s adoption. Around 2:00 we got clearance from Alabama and by 5:00 we got clearance from Florida. You guys, we can go home 😭. Our adoption attorney has become like family and she did everything in her power for this fast turnaround and it worked! We are staying here tonight to get some rest and we will leave to make our way towards Florida to Mia, Kai, and Aria and they will get to meet Luca for the first time 😭. God is so good, I’m so overwhelmed, I don’t think I’ll stop crying for weeks, we love you all and appreciate you all so much. Thank you from the bottom of our hearts for being here 🥹. Cheers to the next chapter! 🤍 #downsyndrome #adoption #viral #fyp #momsoftiktok #nicu #medicalmom #foryoupage

Look at that sweet face!! Outside of about one minute when he was born, I have never seen Luca without tubes on his face!! He’s seriously so beautiful I can’t handle it 😭 Luca’s surgery went well today! I was nervous, i really felt like he would do well but he can sometimes throw us some wild cards so I was a tiny bit unsure, if I’m being completely honest. Luca also JUST started to feel good all the time. He has been consistently happy and content for a few days now it was hard to think about him being uncomfortable again, it’s been months of medical complexities for him, and as a mom it really wears at your heart. This recovery is temporary and necessary for us going home soon. He was a little fussy as we were getting situated but the second he got in my arms he was at peace and fell asleep 🥹. After the surgery, he was extubated quickly and put on room air (no oxygen) seriously amazing!! We’ll spend the next couple of days recovering and start feeds again soon. I’m so proud of Luca, he is such a fighter and seriously the most strongest and resilient baby. I can’t wait for his normal life to be playing with his siblings and constant snuggles, it’s getting so so close, I can feel it 🥰 Thank you all for your prayers and for being here! God is so good 🤍 #downsyndrome #adoption #viral #fyp #momsoftiktok #nicu #medicalmom #foryoupage #gtubebaby

I was 20 weeks pregnant when I got Aria’s Down syndrome diagnosis and I was…. devastated. I casually did the testing, I never once thought about it again, it never crossed my mind that we would be the 1 in 700. I grieved the child I thought I was having but little did I know God was making it abundantly clear it was her all along and this was apart of His plan. He knew me better than I knew myself in that moment and He knew I needed her. He knew she would unlock something in my heart and soul that could only happen through having a child like her. He knew she would break chains of control, perfectionism, and predictability from me and take me on the most wild and amazing adventure, unveiling a life and freedom I didn’t know existed. He knew that she would heal parts of me I didn’t even know needed healing. He knew. He also knew how she would change our world. Open and shift hearts. Break stereotypes. Help grieving and broken mama’s in their hardest moments. Cancel abortions. He knew she would. These have been my experiences over the last five years. It hasn’t all been easy, it’s actually been a journey filled with obstacles, sometimes daily, that we need to overcome. But it’s always been worth it. Hard does not equal bad, hard actually assigns value and makes us treasure it all the more. I choose this hard and I chose it again… So when the conversation of growing our family came up, it felt like an easy yes. Yes, to more of the above. Yes, to more Down syndrome in our lives, yes to all the beauty that it entails. Again, not easy, somehow it’s four times as hard but so freaking worth it. More joy, more love, more glimpses of Heaven. I get to experience being a mother to four of the most amazing children, each such a miracle in their own way and 50% have Down syndrome, how lucky am I?! Down syndrome changed my life, so the opportunity to have more of it was one of my easiest yeses, yes to my Luca 🤍 PS- that light cheek pinch 🥹 #downsyndrome #adoption #foryoupage #momsoftiktok #nicu #medicalmom #viral #fyp #siblings

Year 5 and these are the same thoughts I have every year. #disabilityparenting #vday #valentines #caregiver #medicalmom #nonverbal #gtube #valentinesdaybox #momlife

I can’t believe I get to experience having a child with Down syndrome twice in this life, double the joy, double the love, double the sweetness, double the magic , double the blessing ✨ #downsyndrome #adoption #viral #momsoftiktok #nicu #medicalmom #foryoupage #fyp #siblings

In honor of Feeding Tube Awareness Week (which was last week 🫠) I wanted to bring you all along for what feedings look like for us these days. I have shared that I was intimated by the G- tube but it has been so amazing for Luca and I’m so grateful we have this option for him. For most of us, our kids are alive because of being able to be tubie fed. Though untraditional, I’m grateful for this journey🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #medicalmom #momlife #gtube #gtubebaby #tubielife #tubiebaby

As soon as Lexi takes her first nap, the nurse and I jump into action! Today, we also put some Easter decor up 🐣 #cleantok #battendisease #medicalmom #specialneedsmom #momlife #roomcleaning #hospice

Replying to @_pmar04 that’s his comfort. 🥰 #LucaNolan #medicallycomplextoddler #medicallycomplex #medicallycomplexchild #medicalmom #medicalmomsoftiktok #medicalmomma #EoE #eosinophilicesophagitis #hypoglycemia #dexcom #dexcomwarrior #immunedysregulation

It’s wild to think how far Luca has come when it’s all written out this way. A journey of ups and down, highs and lows, and miracle after miracle, but we made it, we are here planning our exit our of the NICU right before Luca turns three months old. Three months, how?! I’m not the same person who walked into this NICU three months ago. I’m different. I’ve changed. I don’t think you have these experiences and not change. I have new appreciations, a new understanding of life, how sacred and fragile it is. I have had to pray some of the hardest prayers to pray during this journey. “God heal my son, on this side or in Heaven”. Over and over. No words a mother should ever have to pray but we came so close too many times it’s hard to count, also not a count I will do. Motherhood is sacred and the ability to mother your children here on earth is extra sacred, something I wouldn’t have thought twice about before but now it’s part of my daily thoughts. I get to watch my children grow up, all four of them, something I so easily took for granted before and now something I can’t stop thinking about. If we can say that, we are so incredibly blessed. For mama’s who never got to leave with their babies, I see you. I don’t understand it and I’m so incredibly sorry from the depths of my heart. I know you’re here following, I know you get the twinges in your heart. I know it’s unfair. I don’t understand it, why some, why not others, I can’t wrap my mind around it and as I try to my heart shatters into pieces, survivors guilt is real but also the least painful and best option of them all. I want you to know I hold space for you here but also I understand, as much as i can, when you need to step away. It’s just important to me that you know you are seen. On Tuesday we walk out of here. I’ll be hold Luca and taking him outside of these doors. Thank you all for walking alongside us as we do it. Thank you God that I will get to raise all four of my children 🤍 #downsyndrome #adoption #viral #fyp #momsoftiktok #nicu #medicalmom #foryoupage

Ended our v busy morning with good news from his doctor 🥰🥰🤞🏼 • • • • • • • #babydean #momcontent #momsoftiktok #firsttimemommy #mom #momlife #momtok #medicalmom #toddlersoftiktok #morningvlog #babyboy #mommy #pennsylvania

So thankful to see him getting back to his normal happy self. The nurses love him even his mischievousness 😂 #fyp #lucas #cincinnati #hospital #childrens #babiesoftiktok #boymom #medicalmom #momlife #trach

Early mornings, appointment days, full days- i love it all! Happy Monday! #morningroutine #girlmom #medicalmom #specialneedsmom #battendisease #medicallycomplex #grateful

Lucas gave his first name Sign a few weeks ago and it was for Raelynn! 🥹 it’s the letter R in sing language tapped by the mouth 🥰I’m so unbelievably proud of how far he has come and that he is not only getting more fluent in asl but also becoming more confident with his voice and learning to say new words everyday ❤️ #fyp #lucas #bigbrother #Rae #smile #laugh #siblings #babiesoftiktok #viral #viralvideo #boymom #girlmom #momlife #medicalmom

Morning Vlog! Haven’t done one in a while! #momlife #morningroutine #morninginmylife #medicalmom #specialneedsfamily #battendisease #errands #hospice

Medical mama here. Not fazed. 💪🏻😂 #medicalmom #tubefed #momlife #momtok #momsoftiktok #momanddaughter #mamasgirl #parentsoftiktok #trend #viral #4u #fyp #disability #medicalmomtok #specialneeds #specialneedsmom #specialneedsmomma #specialneedsmoms #specialneedsparent #specialneedsfamily #raredisease #congenitaldisorderofglycosylation #ALG11

Quiet and slow mornings are my favorite! #morningvibes #momlife #senoralife #medicalmom #grateful

The work is worh thr memories don’t you think? #wheelchairtravel #wheelchairbasketball #medicalmom

LUCA SMILES ACTIVATED!!! I just can’t get enough of him, like are you kidding me?!?! The wide open mouth smile, the tongue, the double chin, the life in his eyes, just all. of. It. I am loving the moments I prayed for, we prayed for 😭. I love my boys 🤍 #downsyndrome #viral #momsoftiktok #foryoupage #fyp #adoption #nicu #medicalmom #siblings

This might go down as one of my favorite moments in life 🤍 #downsyndrome #adoption #momsoftiktok #foryoupage #fyp #momlife #medicallycomplex #medicalmom

Happy Easter! Here is a little part of our Easter celebration. 💛 We had the absolute BEST time with the family. Definitely one of my favorites! Thank you Jesus for your love and sacrifice! ✝️ #momof3 #easter #specialneedsfamily #medicalmom

It took awhile to get here but we made it 🥹. Seeing all four of my kids together, all happy and healthy is not lost on me. I feel like I’m constantly having “pinch me” moments where I just can’t take it in enough. The difficult times can be a gift in that they make you appreciate the good ones that much more, the smallest things that would normally go unnoticed now are treasured. I don’t think I’ll ever get over this beautiful life I get to live 🤍 #adoption #downsyndrome #momsoftiktok #foryoupage #fyp #momlife #medicalmom #medicallycomplex

Replying to @tinajenness598 Thank you for asking! #birthtrauma #traumaticbirth #csection #birthstory #nicustory #nicumom #medicalmom #youarenotaline #notalone #nicu #savyjaneomalley #cardofhope

Yesterday, we were driving Aria to school and I got a call from the hospital, some of Luca’s tests had resulted from when we were in the ER on Monday and we needed to come in to be admitted immediately for high levels of infection in his body. That morning, Luca had taken a turn and after school drop offs, I had planned on taking him in because he was crying all the time (something was wrong), he still had high fevers and things seemed like they were getting worse. We went back to the ER and they started repeating all tests and as we were there his oxygen saturations started dropping, his fever also started rising. He ended up testing positive for andovirus (respiratory virus) and the results of the infections have shifted a few times. Currently he is being treated for bacterial pneumonia and potentially sepsis. He’s on very strong antibiotics and we are still waiting for these tests to result to know exactly what’s going on but we are covering our basis in the meantime. Luca’s immune system is so weak and he catching things constantly, including at the ER this week. They are also developing into infections so quickly because of his body’s inability to fight it. Last night was horrible, his fever went up to 106.9 on medicine. He was switched to the PICU and put on high flow nasal cannula oxygen. He’s on the edge in every way. There’s a chance the antibiotics start working and the virus starts making its way out of his system pretty fast, there’s also a chance he declines more requiring additional intervention and a potential move to another hospital. I miss Luca’s smile, I haven’t seen it in so long. I’m grateful we were here when everything went downhill so quickly yesterday. I know what Luca is capable of overcoming, so much, the list is a mile long, I also want him to have a really long break, I want him to just be able to be a baby. We so appreciate your prayers. Prayers for a fast recovery, prayers for him to come home, prayers for our family as we navigate all this, prayers for Luca’s smile to return quickly, and prayers for my mama heart. We will get through this, God will see us through, this I know 🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #picu #medicalmom #viral #fyp

What was an ad for a toy turned into some of my favorite videos to watch as I lay here in a hospital bed without my baby #fetalsurgery #medicalmom #spinabifida #myelomeningocele #foryou #highriskpregnancy #specialneedsmom #spinabifidawarrior #pregnantmama #2under2mom #momsoftiktok #foryou #toddlermoms #toddlertoys #27weekspregnant

First attempt in covering this dark brown frame that does not match Emma’s aesthetic 🤭🤍 #momlife #medicalmom

Happy Valentine’s Day!! I love these little lovers of mine. Love defies biology and these four are evidence of that ✨🤍 #valentinesday #valentines #downsyndrome #adoption #foryoupage #momsoftiktok #medicalmom #momlife

I’ve been struggling with how to show up here. I’ve been sick, but it goes beyond that. It’s been hard. Luca cries, a lot. At first, I attributed it to acid reflux, I got the meds, I do think it helped but he’s still just fussy a lot of the time. We then went right into the flu which obviously will make him feel horrible but regardless he has many hour spans of time where he just cries. There are many mornings where Tomas takes the kids to school and I sit in a dark room with Luca and a sound machine and he cries for 2-3 hours straight. It’s such a hard way to start each day. It’s isolating and I haven’t had a baby before that cries a lot so I feel like I’m just constantly trying new things and nothing works, so I just hold him for hours and wait for him to calm down. It’s been so lonely, this season of life is just lonely. So vulnerable to share that but it’s the truth. After a few hours, he calms down and is completely a different baby, he’s calm, sweet, happy, it’s honestly the most wild contrast. Luca has been through a lot, I’m sure there is trauma there medical, adoption, and otherwise and I want to be able to always sit with him in that. I’ve been hesitant to share because I feel like we all anticipated a fairytale from here on out, I know I subconsciously and consciously did and it’s just not exactly panning out that way. Will we get through it? Yes. Is it so freaking hard? Yes. Am I grateful to be home and have my babies together? Yes. Is that looking different from what I had thought? Yes. I do think it will get easier, I do think there is a light at the end of the tunnel and officially move past this hard season. I want to be able to show up authentically and this is just where I’m at right now. I love Luca, I would do anything for him and right now that looks like unconditionally loving and being present when he’s having a really hard time. There are so many sacrificial sides of motherhood and I’m really in a season of living that out knowing God will see me through 🤍 Also @tomasczernek, he carries our family in some of our hardest moments and has an unwavering faith, I don’t think I have ever seen at this level before. He’s amazing 🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #nicu #fyp #medicalmom

#utah #relatable #fypシ゚viral #momsoftiktok #specialneedsmom #specialneeds #medicalmom #toddlermom #toddlersoftiktok #disabilitytiktok #dyes #red40 #bluey #screentime #tablets #gentleparenting #permissiveparenting

What a wild ride my friends, three months in the NICU, followed by two weeks of sicknesses, and then horrible acid reflux, it’s been a journey. But then this last week and a half happened…. we were home, sicknesses calmed down, we started new acid reflux medicine and started the journey to switching Luca formula. Tomorrow he will officially be on full feeds of enfamil AR and he’s thriving on it! It’s made specifically for acid reflux and I’m telling you it’s like I’m finally getting to know the real Luca 🥹. Luca has been happy and so content all the time. He is laughing and smiling constantly. His stomach no longer hurts all the time so he lets me put him down and he plays and plays. He’s no longer gagging and crying in pain which used to break my mama heart. He never gags now, and does not act like his stomach is hurting. He drives in the car with us without crying, I cannot believe I even just wrote that. Everything has changed. When I was in the NICU with Luca I used to fantasize about just a normal family day. Brunch as a family at our favorite restaurant, target while I baby wear, and afternoon snuggles. You guys, I finally lived that day, on Saturday we did just that and I teared up several times just thinking what normalcy we were all living. Sure it was chaotic and wild but it was absolutely perfect. I have waited for the very moments I am currently living and I just couldn’t be more grateful 😭. Thank you all for being, for the riding out the highs and lows for our family. For encouraging, rallying, and praying through every low and celebrating, cheering us on, and praising through all the highs. You have all loved our family so well in this last season and I just wanted to you to know how much we appreciate you all, we love you 🤍 #adoption #downsyndrome #momsoftiktok #foryoupage #fyp #momlife #medicalmom #medicallycomplex

I’ve half held my breath all week. Testing out regular formula to see if his body could process it correctly was stressful, because if his body couldn’t process the fat in milk correctly it would have sent us down a rabbit trail of things that needed to be done, I so didn’t want that for Luca. We did an x ray today and received the results about an hour ago saying no plural effusions and unless you are in the chylothorax world that doesn’t mean much to you but it basically means the fat in the milk isn’t pooling up around the perimeters of his lungs and it’s going to the correct place in his body. The relief I feel right now is unmatched. Such a giant box checked in this whole journey. I cannot believe my sweet boy is five months old old, how is that possible?! What a life he has lived and what a miracle he is in being here. Five of the most scary, beautiful, dark, hope-filled, joy-filled months. Life with Luca is beautiful and I can’t believe we’re just getting started 🤍 God is so so good ✨ #downsyndrome #adoption #foryoupage #momsoftiktok #medicalmom #momlife #nicu #picu

Join us for the morning ✨ #downsyndrome #adoption #foryoupage #momsoftiktok #medicalmom #momlife #dayinmylife #vlog