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Kirstin
@kirstinczernek-
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kirstinczernek's pricing:
Nano: $50–$300
Micro: $300–$1,250
Mid: $1,250–$3,500
Macro: $3,500–$12,000
Celebrity: $12,000+
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#fyp #foryou #dlaciebie #viral #dcb #fy #tend #foryoupage #obsessed #makeup #makeuptutorial #sheingals #shein #sheinEu #leo
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Somehow it keeps getting better. These two are just the sweetest and their bond is just beyond special ✨🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #medicallycomplex #fyp #siblings
00:08Where’s my medical mamas at?!? Just a reminder you are amazing and I know everyday has its own set of challenges but we are doing it!! Fighting for the best for our kids, taking them to all the things, bringing all the equipment, going through our check lists, and going through it again just to double check, maybe triple 🙃. Staying up late worrying, also having so much hope and joy in the midst of it all. Knowing our days are harder and longer than most, also appreciating and having so much gratitude for what most take for granted. We live in a constant state of BOTH/AND and have to get more comfortable with it. Our thresholds are beyond what we ever thought imaginable and we are greeted with more “I don’t know how you do it?” than we can count but the fact of the matter is we all would, as moms, we would all do anything for our children we just have more opportunities to show that 🤍. Thinking of you all today and I want you to know how proud I am of you and me, we’re doing it ✨ #downsyndrome #adoption #foryoupage #momsoftiktok #medicallycomplex #fyp
00:10Luca is the definition of an over comer and we all can learn so much for him. Just a reminder on a Wednesday my friends, we got this 🤍 ps- Luca does this all day long and I can’t get enough, he is literally the cutest little love in the WORLD 🥰 #downsyndrome #adoption #foryoupage #momsoftiktok #fyp
00:06We are SOOOO excited to share we are moving to Nashville, Tennessee!!! This is something we have prayerfully and thoughtfully considered for quite some time… As you all know, an inclusive environment for Aria in school has been hard to navigate here in Florida. It was an endless fight and even though I was getting some systems to work with us it came down to “do I really want her in an environment where I have to beg for her to belong there?”. This was hard to face. Also the reality of “what I am wanting for her she would be the first”. There is so much beauty in that but also knowing everything she would have to face in a system not set up for her, did not seem fair to her. We started researching to see if we could find somewhere that already implemented these things and we found it at the county with the top schools in the nation. Since the moment I got Aria’s Down syndrome diagnosis, I prayed my kids could all go to school together and I’m so grateful to share in the Fall they will be 😭. Since we brought Luca home from the NICU, many of you know the difficulties we have faced in his care. Florida Early Intervention has been so disappointing and the healthcare has been so frustrating. I need more and better for him and he deserves more and better. Tennessee Early Intervention is wonderful and we will also have access to the top hospital and Down syndrome clinic. Mia and Kai are thrilled. Mia’s best friend moved there about a year ago and she’s so excited to be able to walk to her house. We have so many exciting opportunities for them and they will be able to attend school with everyone in the neighborhood, at their age this is so important. Because of the neighborhood we are moving, we can’t bring our animals with us (except for Ginger), we are hoping the buyer will want to keep them here and all together so they can stay in their environment. This was a difficult choice but we have to made these decisions for our kids at this time. I’ll share more of a timeline as it get’s closer! The journey continues, thanks for being here friends! Where’s my Tennessee peeps at?!? TN hats are the amazing @jasondemeo
00:05I’ve gotten to experience the purest, sweetest love for six months now. Six months of joy, beauty, cuteness, snuggles, and so much love. These six months have changed me forever. I love you my Lukie, celebrating milestones with you is just so much sweeter 🤍 #downsyndrome #adoption #picu #foryoupage #momsoftiktok #fyp #adoptionjourney #sixmonthsold
00:10Four very long days but we are home!! Luca will be on oxygen until he can keep his oxygen up on his own and this will just take time. We are home with antibiotics and a breathing treatment regime. I feel confident in handling is care but if we have any set backs we will just head back. I’m so so grateful to have my happy baby back home. I wish you could all personally experience what a joy Luca is because he is on a whole other level. I love seeing his little personality come back to life. I’m back home under one roof with all four of my babies and if you have been following over the last six months you know what a sweet luxury that is for us. I’m treasuring all of these moments and nothing gives perspective like a sick child so the gift of gratefulness remains. Thank you all for you support, love, and prayers this last week, it means more than you’ll ever know. I wish you knew the amount I bragged about all of you and the amount of times you have held us, I talk about it all the time. You are the best community a girl could ask for, we love you 🤍 #picu #picu #adoption #foryoupage #fyp #momsoftiktok #adoptionjourney
00:07Ok a Luca update I am excited to share! Luca had an amazing night, he pretty much slept the whole entire night which means I did too, which is such a win for all! He was comfortable and I could tell last night we were taking a turn in the right direction. This morning, I suggested we start weaning off all the things medicine wise so we could get an accurate picture of how he was really doing. We removed Tylenol and Motrin and his fever is gone, another big win! We took him completely off the mild sedation and within minutes he was awake and playful like you see here and I saw my boy again 🥹. I was so excited to hold him, yesterday I didn’t at all because it would take him awhile to get comfortable, once he did, I didn’t want to mess with him. So I could not wait to get him in my arms again. During rounds, the doctor suggested we turn off the high flow oxygen and see how he does, so we did the trial and he did great. We added regular oxygen and his numbers have been beautiful. With this we have been able to add back in his full regular feeds, so he is currently sleeping on me with a full belly and he’s so happy. I get a lot of questions about Luca’s breathing retractions, so I wanted to share more about it. So at Luca’s baseline he retracts. Because he had severe pulmonary hypertension for so long there is scarring on his lungs and damage that could take up to a couple of years if not more to heal. Because of this it is expected for Luca to have retractions until he is two. His lungs have been through the worst of the worst and because of that it will take awhile for them to fully heal, but they will. There is however, times when they are worse and since I know him I can easily tell when we are switching into a more severe category which is why I brought him in on Monday. His baseline is around a 5/6 and he went very quickly to an 8/9 in my opinion and then we need additional intervention. I’m pretty good at detecting that. I would put us a more of a 6 place now so we are making our way down. Luca is doing great, we have turned a corner and are for sure headed in the right direction. Appreciate you all so much 🤍 #downsyndrome #picu #adoption #foryoupage #fyp #momsoftiktok
00:09Our sweet Luca is such a fighter and as difficult as his health journey has been, I’m so grateful I get to walk alongside him in it. Since the moment Luca was born, he has called out something new inside of me. He requires someone to stand in the gap for him, to advocate, to protect, and to fight for him. I have felt this with each of my kids but because of Luca’s needs he requires more from me. It’s exhausting and empowering, it’s demanding and fierce. I refuse to settle for him and I refuse any system around us to settle, the standard is high because that’s what he deserves and if we experience anything different it’s my job to call it out. I won’t go into details, there’s not a story I want to share here but just know if it’s regarding my son, it will get done and to the best of its ability, there will be no compromising in the care he receives. Now switching pages, last night was rough, Luca was restless and did not sleep more than maybe two hours the whole night. After some conversations, a better game plan was put into plan and Luca is currently on a mild sedative to keep him calm and give him the rest his body so desperately needs. We were able to lower the pressures on the oxygen he is receiving so he is no longer at the highest settings. I do believe if he sleeps well tonight we will be waking up to the version of Luca we know tomorrow. We still have to ride this out, respiratory things for him are serious but I think we will be turning a corner here shortly. I’m believing both of us will sleep tonight, thank you for your prayers they are sustaining us. Love you all 🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #fyp #picu
00:10Ok it’s late and I finally have a minute to write this all out. If you follow on stories you know I took Luca in a week ago for a cough he had at night but was totally fine during the day. Nothing came of it, no virus detected and echo and x ray looked good. They just told me if he got worse to bring him back. So Luca went on house arrest we kept him home and it worked out great because our big kids had spring break so no germs to bring home. The cough continued at night but didn’t get worse. Sunday, I noticed he was more congested and was sleeping a lot more but nothing crazy alarming. In the middle of the night Luca woke up coughing. I noticed he was working harder to breathe and was more congested. We suctioned him, set up his oxygen and he settled down so we kept an eye on him but he went back to sleep. I decided then I would take him in the next morning after we got the kids to school. While I was packing up, I noticed he was breathing hard again but on oxygen and he was running a temp. We got to the hospital and they ran all the tests again this time positive for rhinovirus and his x ray looked hazy. They are still trying to decide but he might have pneumonia. We were admitted, he was put on high flow oxygen and is being highly monitored. It’s been such a long day, Luca is so strong and has handled it all well but it’s still been intense. Thank you all for you prayers, I’ll keep you updated, appreciate you all 🤍 #downsyndrome #adoption #foryoupage#momsoftiktok #picu #fyp
00:08TODO LO QUE TENGO QUE HACER🥺 TE UNO A WASSAP SI ME PASAS ESTE VIDEO POR INSTA: CARXLOSC #fyp
00:23TODO LO QUE TENGO QUE HACER🥺 TE UNO A WASSAP SI ME PASAS ESTE VIDEO POR INSTA: CARXLOSC #fyp
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