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I'm part of a community that no one wants to be part of but am thankful 🙏 I have them. it's my Sanfilippo Syndrome Community. Ryder was dxd April 12,2016 when he was just 2 years old. I was told to take him home and love him while I can. I fought for the past 8 years! Raising awareness and funds for clinical trials. 🙌 But yet so many children are still suffering and dying. imagine dementia but in a child! #sanfilipposyndrome #weneedacure #signlanguage #fyp
Duration: 38 sPosted : Tue, 16 Apr 2024 21:00:49
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Replying to @joeylynnhaynes78 #bye #deaf #see #signlanguage teaching swear words gets people interested in actual signing and taking classes. 🙄 you are 🐔 blocking our language let people have fun 👍
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⚠️TACI.LYNN⚠️
7 months_ago
Replying to @travisbabb325 #greenscreen #sweetchildofmine #signlanguage #see #fyp #fls #1mil #rydervolt
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⚠️TACI.LYNN⚠️
7 months_ago
I'm part of a community that no one wants to be part of but am thankful 🙏 I have them. it's my Sanfilippo Syndrome Community. Ryder was dxd April 12,2016 when he was just 2 years old. I was told to take him home and love him while I can. I fought for the past 8 years! Raising awareness and funds for clinical trials. 🙌 But yet so many children are still suffering and dying. imagine dementia but in a child! #sanfilipposyndrome #weneedacure #signlanguage #fyp
7.1K
1.1K
77
⚠️TACI.LYNN⚠️
7 months_ago