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Our sweet Luca is such a fighter and as difficult as his health journey has been, I’m so grateful I get to walk alongside him in it. Since the moment Luca was born, he has called out something new inside of me. He requires someone to stand in the gap for him, to advocate, to protect, and to fight for him. I have felt this with each of my kids but because of Luca’s needs he requires more from me. It’s exhausting and empowering, it’s demanding and fierce. I refuse to settle for him and I refuse any system around us to settle, the standard is high because that’s what he deserves and if we experience anything different it’s my job to call it out. I won’t go into details, there’s not a story I want to share here but just know if it’s regarding my son, it will get done and to the best of its ability, there will be no compromising in the care he receives. Now switching pages, last night was rough, Luca was restless and did not sleep more than maybe two hours the whole night. After some conversations, a better game plan was put into plan and Luca is currently on a mild sedative to keep him calm and give him the rest his body so desperately needs. We were able to lower the pressures on the oxygen he is receiving so he is no longer at the highest settings. I do believe if he sleeps well tonight we will be waking up to the version of Luca we know tomorrow. We still have to ride this out, respiratory things for him are serious but I think we will be turning a corner here shortly. I’m believing both of us will sleep tonight, thank you for your prayers they are sustaining us. Love you all 🤍 #downsyndrome #adoption #foryoupage #momsoftiktok #fyp #picu
Duration: 10 sPosted : Wed, 10 Apr 2024 15:25:57Views
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