PIXIE -ROSE YOU ARE SO LOVED 🫶 . From day one i have felt that Pixie has come to Earth for a reason, im not sure how long she will stay but she has touched so many hearts and brought so many people together in a short time, we are grateful of every moment we spend with you as im aware they said she wouldnt even survive 24hours Earth side… . We are so proud of you darling girl 💛 . . . #h#heartbabyo#octopusheartp#pixierosep#pixierosen#nicubabyn#nicumumr#reallifestoryr#realmotherhoodn#newbornbabyh#heartbrokenp#pixiebabyn#nicujourneyn#nicufamilym#mumwithhearts#sunshinecoastmumsandbubscardiacbaby #y#youaremysunshineo#ourbabysjourneyb#babynumber4m#mumof4#motherslove

PIXIE-ROSE DAY 16 you are surrounded by love and positivity 🧚‍♀️🌹 Times like this I’m grateful my family is big, they have come together to support and shower us all in so much positivity and love… Today 2 of my sisters, mum and I sang one of our favourite songs to Pixie girl… “You are my Sunshine” . This is the most beautiful moment to remember she is so precious and so loved by all.. . The last few weeks I truly have realised how sheltered I’ve been having 3 perfectly healthy kids, never have I experienced something to this severity… I have barely been allowed to hold her because it’s to dangerous for her, she is full of lines from her bellybutton , down her throat on drops on both hands into her heart, lunges,stomach, she is on a ventilator for oxygen and currently breathing through a straw down her neck… She also has something they call wet lunges and every 20 minutes she is getting a suction to suck out the mucus from her lungs so she doesn’t drown herself in it, she has one on one help 24 hours around the clock… It makes me realise how lucky I am to have healthy babies it also makes me realise how many people have been through this silently struggling… I made a decision to celebrate her every day and share her journey as I know for me other stories have really helped me and given me information I would never of known if I didn’t share mine or go looking for answers… If it helps someone else know there not alone and they too can be open I truly believe it can heal us and help us get through our traumas and hurt… Something I’ve found interesting is people really avoid the real stuff that happens, the confronting things that life throws us, but as sad as it is this is life..”I was one of these people” . I’m proud of our little girl she is truly here to heal, connect and bring love and peace… . I’m grateful I get to spend these moments with you 🫶 . . . . #pixierose #sunshinecoastmumsandbubs #nicumum #niculife #nicubaby #bigfamily #familylove #sisterslove❤️ #auntylove #granbaby #heartbaby #nicujourney #ourbabies #nicufamily #sickbabygirl #realfamilies #realmotherhood #pixiebaby #2weeksold #cardiacbaby #youaremysunshine #sistersforever