I'm part of a community that no one wants to be part of but am thankful 🙏 I have them. it's my Sanfilippo Syndrome Community. Ryder was dxd April 12,2016 when he was just 2 years old. I was told to take him home and love him while I can. I fought for the past 8 years! Raising awareness and funds for clinical trials. 🙌 But yet so many children are still suffering and dying. imagine dementia but in a child! #sanfilipposyndrome #weneedacure #signlanguage #fyp