I get 10 days with no nose hose:) #pots #posturalorthostatictachycardiasyndrome #potssyndrome #dysautonomia #gastroparesis #njtube #chronicillness

Litterally fallin for ya 🤍 thanks for helping me avoid concussions!#fainting #syncope #funnyfainting #dysautonomia #pots #potssyndrome #faintingtown

Often times #POTS hits you in the most random moments. Which is why Bailey is so vital to my health. I was just trying to get a drink to go with my sandwich and apparently my Heart decided to not work correctly. Without Bailey, I wouldve fainted and couldve hit mh head. #pots #potssyndromeawareness #potssyndrome #fyp #foryou #servicedog #spoonless #potssyndromeillness #dog

The daily struggle with POTS is often a silent fight. People do not understand how debilitating it is on a daily basis. My condition worsens as I try to just keep my life in order. It’s so unbelievably heartbreaking to realize your body can’t even handle doing dishes anymore. #pots #potssyndrome #potsawareness #spoonless #disability #POTS #fyp #foryou #servicedog #GetCrackin

Something as simple as washing the dishes can be dangerous for my heart. Bailey is able to tell me before things get bad. #potssyndrome #postualorthostatictachycardiasyndrome #servicedog #DidYouYawn #fyp #foryou

thanks for catching me hg #faintingspells #chronicillness #potssyndrome #pots #faintingepisode #chrinicillnesstiktok #potssyndromeawareness

I don’t know where I would be without these amazing people! I am grateful for them everyday🤍 #fainting #foryoupage #faintwithfaith #fyp #potssyndrome #potsawareness

reminder: there’s A LOT of fainting episodes that aren’t caught on camera. #chronicillness #faintingspells #faintingspellsawareness #pots #potssyndrome #potssyndromeawareness #syncope

another draft oops #tubie#tubielife#feedingtubeawareness#njtube#njtubie#gastroparesis#dysmotility#heds#ehlersdanlos#ehlersdanlossyndrome#stomachissues#stomachproblems#gastroissues#dysautonomia#pots#potsie#potssyndrome#tubietape#tapechange#medical#disability#chronicillness#spoonie#zebrastrong#mytummyhurts

Spot the potsie!! Ib: @Hannah Sutherland 💕💕 #pots #potssyndrome #salt #saltshot #spoonie #chronicillness #dysautonomia #potslife #chronicillnessawareness

Tummy hurts #pots #potssyndrome #salt #DoTheJuJu #ShareTheMagic #PawlidayPics #fyp

🩵 #potssyndrome #chronicillness #kimmirhoades #fyp

I don’t have fight or flight anymore luckily! My specialists got my wonky heart rates under control in the last few years. #potssyndrome #fyp #fainting #foryoupage #dysautonomia #potsawareness #fightorflight

I’m glad that I was finally put on treatments for my migraines and dysautonomia. They both constanlty combated eachother and many days I spent as a 17 years old were like this. #chronicillness #fainting #dysautonomia #faintingcondition #potsawarness #potssyndrome #dysautonomiaawareness #migraine

#pots #potssyndrome #EndlessJourney #fyp #foryoupage #autoimmuneawareness #chronicillnessawareness #lonely #F***Pots

May make this into a little series? 👀 #servicebearmabel #servicedoglife #servicedogteam #servicedoghandler #servicedogs #servicedogsoftiktok #servicedogssavelives #disabled #disability #pots #potssyndrome #dysautonomia #dysautonomiaawareness

I wish I could’ve warned my preteen self about what was going to happen. All the things that I’d fight through, and the people I would need to prepare to lose. I just want to give little me a hug and tell her how great she will be, despite everything. #dysautonomia #potssyndrome #potsawarness #dysautonomiaawareness #chronicillness #chronicallyill #passingout #fainting #ncs

Replying to @Carrie 10/10 chronic illness/chronic pain purchase #chronicillness #chronicallyill #ci #tubefed #feedingtubeawareness #tubefeeding #gjtube #gastroparesis #gp #tubie #chronicpain #ehlersdanlos #ehlersdanlossyndrome #heds #hypermobile #hypermobility #hypermobileehlersdanlossyndrome #pots #potssyndrome #potsawareness #dysautonomia

Replying to @rileyviolettexo Here it is!😊 #chronicillness #chronicallyill #ci #ehlersdanlos #ehlersdanlossyndrome #heds #hsd #pots #potssyndrome #potsawareness #dysautonomia #tubefed #gastroparesis #gp #feedingtubeawareness #gjtube #pregnancypillow

In this 10 minute video we take a deep dive into Postural Orthostatic Tachycardia Syndrome or POTS What is it? How does it affect people? What are the symptoms? How do we diagnose and treat POTS? Please like and share!! #potssyndrome #POTS #tachycardia #dizziness #lightheadedness #cardiology #nervoussystem #autonomicdysfunction #autonomicnervoussystem

Replying to @trippybackup07 *not mentioned in the video is my also recent fibromyalgia diagnosis, because all of the trauma my body went through in such a short timeframe a lot of permanent damage was made. I met my husband 4 days after my permanent Ostomy appointment and even though my health was going downhill we fell madly in love and he ended up agreeing to be my caregiver:’) 2 diseases have now ended up being 7 and a need for mobility aids, but, im still here!! Thats all i could ask for ❤️ #potssyndrome #ostomybag #crohnsandcolitis #crohnsdisease #ulcerativecolitis #ibdvisible #fibromyalgia #chronicpain #ehlersdanlossyndrome #ehlersdanlos #disabilityawareness #dysautonomia #ileostomy

I’m a very lucky lady🤍🥺 Footage of this pre-syncope spell was taken on February 4th. This is for awareness purposes! #fainting #dysautonomia #faintwithfaith #faintingcondition #potssyndrome #potsawarness #presyncope #fyp #dysautonomiaawareness #chronicillness #chronicallyill

essa foi uma relativamente leve porque eu tava bem alimentada e tô num período bom das síndromes, mas achei interessante trazer o vídeo com essas explicações pra vcs #potssyndrome #disautonomia

My whole life is especially interesting because of my sister. I don’t know what I would do without her💙 This footage was taken on February 3rd. #fainting #dysautonomia #faintwithfaith #faintingcondition #potssyndrome #potsawarness #dysautonomiaawareness #siblings #chronicillness #invisibleillness #fyp

Would you want this friend? I would love if someone gave me the option to tell them what I’m capable of - it’s the thought that counts to me. ❤️ (This video is a pov for an annual girls trip you’d normally go to - I def don’t expect to be invited to every single thing lol) #pots #potssyndrome #dysautonomia #pov #chronicillness #chronicpain #friendship #girlstrip #skit #fyp #xybca

Mabel doing her bestest 💜 #servicebearmabel #servicedoglife #servicedogteam #servicedoghandler #servicedogs #servicedogsoftiktok #servicedogssavelives #disabled #disability #pots #potssyndrome #dysautonomia #dysautonomiaawareness

Sindrome de Taquicardia Postural Ortostática ¿Tienes esos síntomas? Consulta a tu cardiólogo y dile que sospechas de tener disautonomía. #pots #awareness #fainting #potssyndrome #dizzy

this is my first time weightlifting since the other video i posted that made ppl go nuts hahaha so if it looks like IDK WTH i’m doing.. it’s because i don’t! but i still kinda wanna get good at this so i’m gonna see what i can do about the fainty fainty XD #motivation #fitness #potssyndrome #POTS #gymtok #weightlifting #fyp

Lately, my #POTS symptoms have been extremely bad. I do not even have enough time to take my medication anymore. Luckily, Bailey alerts soon enough for me to get down to the ground and for me to prepare. I am exhausted, and drained. I feel like im just constantly falling backwards. After a fainting episode, i have a migraine, severe nausea, chest pain and more. It doesnt end. #potssyndromeawareness #potssyndrome #servicedog #postualorthostatictachycardiasyndrome #foryou #fyp #pots #disability For those asking how I am able to film mg episdoes- i have multiple episodes a day, usually, i have cameras recording throughout my apartment on the difficult days.

Its hard out here for a b 😔✊🏻 #hypermobileehlersdanlossyndrome #ehlersdanlos #ehlersdanlossyndrome #chronicallyill #chronicillness #chronicillnessawareness #chronicillnesswarrior #disabled #disability #disabilitytiktok #potssyndrome #posturalorthostatictachycardiasyndrome #posturalorthostatictachycardia #mobilityaid #wheelchairuser #ambulatorywheelchairuser