Happy birthday to Aunt Jessica! Almost eight years ago when we learned about Sadie’s Sanfilippo diagnosis Jessica quickly recognized the importance of channeling our sadness into something productive. Thanks to her efforts, Sadie’s journey with Sanfilippo Syndrome has reached millions of people. In addition to the daily managing of Saving Sadie Rae’s multiple social media platforms, she also serves on the board of Cure Sanfilippo Foundation tackling projects like clinical trial data sharing, as well as advocating behind the scenes by attending conferences and connecting with doctors, biotechs and pharmaceutical companies. Her thorough and steadfast advocacy has given mom and dad much needed space and time to focus our attention on Sadie’s daily care, especially as her care needs increase. We are so lucky to have our wonderful Auntie “Jessita” in our lives. Happy birthday! #auntie #auntielife #advocate