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Tricia Eileen Melland
@tmelly231-
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Got home Friday (4/5) and sure enough, Mon (4/8) I spiked a temp. Blood cultures were drawn & they’re once again growing yeast. I was readmitted Monday, just a few days ago, and restarted on amp b. Still figuring out a game plan and waiting on more cultures and tests. Ugh I hate this. #teamtricia #terminallytricia #intestinalfailure #translocation #sepsis #fungemia #candida #bloodstreaminfection #mito #eds #cvid #mcas #centralline #tpn #lifesupport #tracheostomy #trach #ventilator
00:12The jumping in this dance nearly did me in! But what better way to celebrate being home after a long hospitalization?! #danceparty #beenlikethis #danceitout #danceon #dancingthroughthepain #teamtricia #terminallytricia
00:15Can you tell I was bored? Oh man! 😅 Thursday Health Update (4/4): After repeat negative cultures, IR placed a new triple lumen tunneled IJ on Friday (3/29). It took hours of them digging around in my chest, multiple puncture sites due to scar tissue issues/line kinking, and then they ran out of anesthesia mid procedure. Traumatizing as it may have been, it’s a total miracle they got a line in at all, so I’m doing my best to focus on that. But of course the fun doesn’t stop there. My new line then wouldn’t stop bleeding for nearly 2 freaking days! A combo of surgicel, lots of pressure, a 10lb sandbag on my chest, extra sutures, a bunch of lidocaine/ epinephrine injected at the site, many amazing nurses, and a very kind and patient IR fellow, eventually got it under control Sunday afternoon. Now that I have a brand new clean line, home is finally in sight! It takes quite a bit of coordination with my outpatient infusion pharmacy and home health to get all our ducks in a row, but it’s looking like it’s coming together. 😆🎉 I’m not back to my baseline yet and had some scary cardiac issues last night, caused by electrolyte imbalances. (You can see a few baby PVCs on the heart monitor in the TikTok lol) Good news is we stopped the amp b causing the electrolyte drops, but the bad news is I tend to have delayed drops and we can only draw labs so often at home, so please pray I remain stable. Thank you all so so much for all the love and prayers. Your kindness and support means more to me than you will ever know. #teamtricia #terminallytricia #bacteremia #fungemia #vascularaccess #intestinalfailure #mito #eds #mcas #cvid #tpn #centralline #trach #tracheostomy #ventilator #lifesupport #respiratoryfailure
00:18Discomfort?! A 4in long needle digging around in my arm for 20 min hitting nerves = PAIN my dude, not discomfort. 😆 y’all are so afraid of using the word pain to describe anything it’s comical #hospitallife #bloodcultures #terminallytricia #teamtricia #bacteremia #fungemia #candidaglabrata #vascularaccess #centralline #tpn #intestinalfailure #mito #eds #mcas #cvid
00:07Hospital Update: Last Sunday (3/17) they pulled my infected line and placed a quad lumen femoral line in IR. We hoped the yeast growing would be the less resistant strain but that would be too easy. How I love being an overachiever. 😜Once again, amphteracin b is my only shot at kicking this so we are hitting me with that. The blood cultures initially continued to grow candida glabrata after pulling the line, setting things back a bit. But if all goes perfect and my most recent cultures remain negative, they can potentially place a new triple lumen line & pull this femoral as early as Wed/Thurs. I’m still having chills, sweating, and my WBC jumped a bit so we are keeping a close eye on that. I’ve had a huge increase in ostomy output, which only happens when I have a gi bleed usually, and my hernia is definitely getting bigger. My ileostomy is swollen and the skin is actually bruised around the stoma itself, which I’ve never had before, so who knows what is going on in there. We’re kinda just waiting and watching that stuff too atm. I’ve had more chest tightness, shortness of breath, and some pulmonary edema, so they have been messing with my vent settings, trying to get control of my co2 and ph. Lots of adjustments trying to find a sweet- spot breathing wise, but we finally seem to be getting there. Ugh, this is not how our ski trip was suppose to go. I didn’t even make it past Denver. I can’t believe I’ve been stuck in the hospital for over a week now. Please pray I start improving and can get my new line soon. I feel so blessed, as everyone taking care of me so far has been nothing but amazing. I can’t complain too much about the view either, but damn I just want to go home already! 😭 #teamtricia #terminallytricia #bacteremia #fungemia #candida #sepsis #intestinalfailure #tpn #ventilator #tracheostomy #trach #lifesupport #mito #eds #mcas #cvid
00:41Still pretty sick & stuck in the hospital in Denver at least until next week. The infection in my blood is of course the extremely resistant candida I’ve struggled with in the past. Only took me about 23hrs to notice, but my girl @Meghan Trainor reposted me dancing to her tiktok story, so I can’t complain about my life too much rn 😆 #beenlikethis #meghantrainor #danceitout #dancingthroughthepain #teamtricia #terminallytricia #sepsis #bacteremia #fungemia #intestinalfailure #respiratoryfailure #tracheostomy #ventilator #lifesupport
00:16I was suppose to be sit skiing with the NSCD in Winter Park, CO the last couple days but the universe had other plans. We got stuck in Denver thanks to a big snow storm, so I figured what better time to throw hands with a little bacteremia and fungemia? My amazing drs and home health company overnighted new iv antibiotics to our hotel as soon as my cultures started growing. We initially were hoping they’d kick in & I’d be able to make it up the mountain to ski. Unfortunatley, I continued to get worse and then my cultures grew yeast, so off to the hospital I went. Having to go to the hospital, especially one that doesn’t know me, is always scary. Thankfully everyone has been amazing so far. I’m heading down to IR now to have my infected line removed & a quad lumen femoral placed. Please pray I remain stable and we can get this infection undercontrol asap. With how sick I got in Dec, my medical PTSD and anxiety are through the roof. #teamtricia #terminallytricia #sepsis #bacteremia #fungemia #centralline #ptsd #medicalptsd #interventionalradiology #ir #femoralline
00:05I don’t actually beleive God is causing me all this pain just to teach some lessons. He doesn’t give us what we can handle, He helps us handle what we’re given. Sometimes shit just happens! 🤷♀️ There are lessons to be learned from my life and suffering, but He is not doing this to me simply to teach us those. Thank you for coming to my ted talk.
00:15TODO LO QUE TENGO QUE HACER🥺 TE UNO A WASSAP SI ME PASAS ESTE VIDEO POR INSTA: CARXLOSC #fyp
00:23TODO LO QUE TENGO QUE HACER🥺 TE UNO A WASSAP SI ME PASAS ESTE VIDEO POR INSTA: CARXLOSC #fyp
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